Charcot Marie Tooth Awareness

Region - posted Aug, 23 2013

REGION - September is Charcot Marie Tooth (CMT) Awareness Month in Connecticut. CMT is the most common inherited neuromuscle disease effecting nearly 150,000 Americans and more than 270 that we know of within a 60-mile radius of Hartford. It is caused by a gene defect resulting in decreased muscle use starting in the hands and feet, and progressing at an indeterminate rate inward. Patients may need orthotics, ankle-foot- orthotics to prevent falls from footdrop and ankle weakness and in severe cases need canes, walkers and scooters. There is currently no cure but the Star Initiative started by the national support organization as made great progress in identifying genes that cause the disorder and thanks to researchers at NIH, U Penn, U Iowa, France and England a pill to reduce the symptoms may be only a few years away. There will be a support and action group meeting for the greater Hartford area meeting at Manchester Hospital, Hospital Room A at 7 p.m., on Sept. 18. The support group provides a forum for exchanging info on knowledgeable neurologists, orthotics, physical therapy and life assistive devices. Guest speaker will be a Board certified pedorthist and New England Medical sales manager for Aetrex Shoe Company, a line of shoes adapted to special-needs patients. Those planning to attend should contact Roy Behlke at 860-643-8792 or at rfbehlke@snet.net.


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